jeanee's Cancer Blog
May 17, 2010
Well well well, after canceling my own chemo 2 weeks ago due to may set backs including neuropathy, I met with my oncologist today and he said NO MORE CHEMO~. I am done. All we need to do now is to get me to heal. Then we will do blood work every month to check for tumor markers, have cat scans quarterly and my colonoscopy every year. At some point I am going to need ro do an upper endoscopy and consider a hysterectomy due to my lynch syndrome but for now I am moving on as a survivor. I am a mixed bag of emotions right now. I wanna dance (but I can’t because of my leg pain) I want to cry and let it all out, I wanna get active in cancer awareness, but most of all I am looking forward to having my life back. I am forever changed but I am a SURVIVOR> I am praying for all those still fighting. I will keep in touch with all of you.
Thank you all for being there for me. This is a wonderful site and has been a great help to me this past year.
God Bless! Love Jeanee
Jeanee,
I am so happy that you are done with treatments and on your way to recovery. The emotions are normal and we will probably always be emotional. Maybe not as bad as we are at first. Being survivors has changed our lives forever. Not necessarily in a bad way but just different. I will continue to keep you in my thoughts and prayers. Please post back and keep us updated on your follow ups and healing.
hugs
Nancy
Posted on Congrats Jeanee!
Welcome to a new chapter in your life. Putting your life back together will be challenging. It’s a long road, yet you have the inner strength to handle what ever comes your way. Already you are a stronger person than you realize.
God bless you in your recovery.
Jacques
Posted on Wonderful news! Its great to be finished with the
chemo treatments. God has blessed you and I know you are very thankful.
Take care & God Bless….. Ed
Posted on Yay, Jeanee!
Congratulations, you did it! You made it through! Take some time for yourself now and get your life back. Rest, celebrate, and dance in your chair!
Blessings and hugs.
Peace,
Kathy
Posted on Hi Jeanee—
It’s certainly good to get an update from you and I’m so happy to hear that your chemo is done! Congrats on getting through all of that. You’ve been through so much and now the healing can begin. I think we all have emotional ups and downs with this disease—it’s hard to not think about it sometimes. But it does get easier the farther away from it you get. Please know that I think of you often and will always be happy to see another update from you. Take care, keep moving forward, and know that you are always in my prayers.
Hugs—
Martha
Posted on Hey Jeanee, I was just thinking about you and here you are. Congratulations my dear friend, that is wonderful news, I am so very happy for you. Many hugs and prayers,
Eli
Posted on uhhhh, I know how bad neuropathy can be, BUT for me, it just went away a few months after my chemo ended! I hope that is good news to you, and something that will give you some hope. It is so scary to think that it might just go on forever, but it actually TOTALLY went away for me, and I think that most people have that end result…I will definatly prey for you, like I said, I know it is so scary, and it is so painful…Going on as a survivor is tough for me so far, but looking back, I am grateful that my chemo is overwith too, how could I not be, right?
-Katie XXXXX
Posted on You may now exhale! God showed you good favor. I too got the no more chemo in Jan. this year. I had stage three ovarian. I got my life back but still no feet. Neuropathy of course but who cares I’m still here. He has granted us another term for he has much more for us to do. Live, Love, and most of all Laugh often. God Bless!
Posted on hi, jeanne. so glad to hear from you. excellent news that the chemo is done. YEA! you can now officially move on with your new normal life. i am so happy for you. i will pray that the neuropathy goes away and that you will live for many years to come with cancer being only a bad dream. God bless you. debby
Posted on I’m so happy for you jenna. I still have my reversal this coming Friday and I can’t wait to get this over and done. It’s been hard road for both of us but at the end we will make it.
Posted on Way to go! I want our team of survivors to grow every day! We can beat this war and I will never give up until it is totally defeated!
congrats and stay positive!
hugs
amy
Posted on Hey YAY! I am a few months late in congratulating you, but YAY! I’m happy for you to be cancer free, and will e excited to hear I am too!
Posted on April 26, 2010
Hey Guys!
Long time since I have posted. I have been going through my last round of chemo (hopefully last). I have now had 5 of eight treatments. A lot of times we end up postponing because my white count it too low. Then other times I get random high fevers. The last thing was that last week they let me have treatment but they cut out the Oxaliplatin because I have had some pretty bad neuropathy. My oncologist told me before we started that it’s a common side effect but he was hopeful that it would not kick in before the last treatment. It has been there all along. I get pins and needles in my feet and then really weak sore muscles in my legs and now some pain late in the day. To be honest it scares the crap out of me because I have seen stories where it never goes away or takes a long long time. The wound dr told me to take b complex vitamins but that is pretty much all i have been told. I am pretty sure that some people take neurotin for it but I am not a fan of meds with so many possible side effects. I honestly when I walk feel crippled some times. Some times I lose my balance. I am not sure I even wanna continue treatment but I know it’s vital to lessen my recurrence chances. I will be honest I am so tired of all the setbacks, drs and fatigue I am getting pretty down. Trying to keep my chin up but some days I just wanna bawl my eyes out. I always try to keep a smile on for people around me but it SUCKS. SO…..that being said does anyone have any experience or advice for neuropathy?
I hope everyone is hanging in. I love so many of you just by simply knowing what we are all going through. HUGS for everyone! Two hugs even!
Much love, Jeanee
Seeking Neuropathy advice and experience, 
9 comments)
Hi Jeanie,
I’m sorry you’re suffering with this. My mom had neuropathy due to diabetes. She never found anything that really helped. That was years ago, so there must be something now.
I bought a program called The Healing Codes. There is now a book out by the same doctors who created the program. You can get it on amazon and it’s called The Healing Code by Dr. Alex Loyd and Dr. Ben Johnson. This program was a lifesaver for me. It reduced the amount of stress I felt and relieved the anxiety, insomnia, etc. It may be worth a try. Stress can cause so many problems. By doing the Healing Codes, Dr. Johnson cured himself of Lou Gerhig’s disease.
Anyway, I’m sending hugs,
Theresa
Posted on Hi Jeanee—
I don’t have any experience with neuropthy, but I know there are some people on the blog who have and I hope they will chime in. I do, however, have a book titled “The Chemotherapy Suvival Guide.” In it is a section on perhipheral neuropathy. One supplement that is suggested is Glutamine, which can be purchased without prescription. Another is alpha-lipoic acid, which is found in foods such as spinach, broccoli, peas, brussels sprouts and rice bran. I don’t know if or how well you can tolerate any of those foods, but those are the ones listed in the book.
I know it’s very hard sometimes to not get discouraged and feel down while dealing with all of this. My heart goes out to you. But as you say, if you want to improve the odds of not having a recurrence, this must be done. Remember that it’s not forever and there will be an end to the chemo. Until then, please keep us posted and know that you are in my thoughts and prayers.
Hugs—
Martha
Hang in there Jeanee, you are in our prayers..
God bless…... Ed
Neuropathy does suck! I have had it since my very first chemo and though I haven’t been taking the chemo that causes it since last summer, I still have it. I’ve found that stimulation on your feet is the best thing. My brother bought me a foot massager called Homedics at Wallgreens which has ball bearings that rotate and move in circles. It feels good. Also one of my trial nurses that had breast cancer and still has it claims that those plastic clogs that have little bumps on the soles help her a lot. Also (and this is a good excuse) getting pedicures with foot massages makes my feet feel better.
Basically the more I walk and move, the better it feels. It is worse when I’ve sat for a while and then get up. I guess what I’m saying stimulation helps me.
Hope this helps and wish there was a pill to make it better. Let me know if you hear anything else that helps. You hang in there and keep your eyes on the finish line.
Teresa
Posted on I am 6 months out of chemo and have the neuropathy. Yes, I take B6 which is what my oncologist told me to take. It is much better in my hands, almost gone, but I still have it in my feet. My oncologist told me it could take a year or longer to go away and yes, in some cases it never goes away. My feet are somewhat better but still not near as good as my hands. I try to massage my feet to stimulate the nerves. I heard that medicine you were taking aboout makes you really drowsy so I don’t take that. Hope ths helps! I didn’t get the neuropathy bad until my very last treatment.
hugs
amy
hi, jeanne. i don’t have any neuropathy treatments i can think of, but i did wnat to just say hello. it is so good to hear from you. i think about you all the time and wonder how you are doing. you are close to the end of your treatment… so just try to hang in there as best you can. i am praying for you. God bless you. debby
Hi Jeanee,
I am so sorry that you have to deal with all of this. I can not help you with the neuropathy as I have never experienced it. Hang in there! Soon treatments will be over and you will be on your way to recovery. Sending many special prayers your way!
Nancy
Hang in there girl. Keep the faith and stay strong you are in my prayers!
Hugs,
Eva
Posted on 
10.01.09 
Thanks for your support - 
